Blood test result

I went to blood test last week, the result show that my CEA when up from 500 to 800 and my CA 19.9 when down from 50 to 41. What does that means? Is my cancer under control or it is not? The doctor advice me to go for CT scan in dec. But I don't feel like going.

My last scan is in sept, I wish to do 6 months once, but the doctor say is a litter dangerous. She advice me if anything wrong in CT scan u can still control with chemo but don't wait until it is worst. To me, if no pain I don't what to do any scan at all even the blood test.

Can anyone help me?

1 month with Chinese medication

After months of having the Chinese medication from my sister in law and very hardworking on Qi Neng Qi Gong. I can feel my Fight is winning soon. Tomorrow I'm going for the blood test, I hope the result will be good.

I'm not going to do any MRI test or CT scan. But the doctor advice me to go for blood test. Do u think I should go for the blood test?

Days without chemotherapy for 35 days

My back waist felt litter pain. It is the feeling 5 months back before I was diagnose. The pain make me feel insecure. I keep on telling myself, I need to trust the medicine. If I don't trust it will never work.

However, just in case if anything happen, I wish to meet with some of my best friend who have not meet each other for years. I have been planning dinner at my home every now and then, to keep in touch with them, I hope it will not be too late.

I used to be workaholic, therefore do not have the time to spent with schoolmates and family. Sorry, for that.

After guo Lin Qing gong exercise, the back seem to feel better. I notice I cannot carry thing, it get painful when I carry my son. I must remind myself, no matter what happen do not carry him anymore.

Cannot sit too long either. It will get pain if I sit long.

My sister say I must be careful, as the bones can break easily. But the doctor be re infome me about this. Her friend father backbone broken, and need to reconstruct a fate back bones. So I better be careful.

A friend of mine also recommend me to eat sea mineral to protect my bone while I'm still taking zometa to protect my bones.

I never expect to recover, I only wish to maintain at this condition at least till my son schooling.

Treatment schedule

5.30 am. Sea cucumber pill
6-9 am. Guilin Qi Gong
9.30 am. Sabah snake grass, and pin chai Wong
11- 11.30am.Meditation
12 noon. Porcupine dates
1-5 pm. Fungus, mushroom, pines tree leave, almond water.
4 pm. Wheat grass or fruit juice
9 pm. Porcupine dates

Very busy, as I have to take care my son also.

Final destination

Today finally my husband and I decided to give ourselves a break. We went to watch Final Destination. I felt think story relates to myself so much, I could be the next. But who knows, whose name the next. Those who die with accident can be even faster than me. So no worries, there are always someone more bad than me. I consider lucky, as I can still do what I wish.

My 3rd opinion doctor

I went to see 3 rd opinion doctor last week, and the doctor ask me a lot of question but end up he did not tell me what those the question relate to my cancer. Below are the question:

1) when is your 1st period
2) at what age you got married
3) at what age you got pregnant, and your baby was born?
4) what else sickness do you have in your live
5) your mother die at what age,


At the end he tell me my current doctor are cheating money, as The only medicine suitable to prolonged my live is alimta. Because it has the least side effect. My current doctor which used avastin with gemzar and cisplastin will not help me to cure my cancer and I'm wasting money.

He said there is no right or wrong, if I want to be at home to just continue the rest of the time it is fine. The most I have is 5 years. If I go on alimta I might just survive a few months more maybe, or I might die faster. This is depend on your body condition. Since you have no pain at all you don't even have to come to see doctor, but if you wish to chit chat then you may come.

There will be no CT scan or MRI as it doesn't not make any difference. Don't waste the effort.

This will be my last visit to doctor as I'm really down every time after a doctor visit. I can't sleep well for few days. It Takes me a few days to be strong again.


Chit chat means just answering question, there will be no CT scan or MRI scan at all as it does help. Even if you feel pain, he will not conduct any scan also. As it makes no difference.

I think this will be my last visit to doctor, as every time I see doctor it give me a very bad feeling. Then it take times for me to be strong again. I couldn't sleep well every time after I see doctor.

As my white blood cell are still low, I will start my traditional medicines from my neighbor on Monday. My neighbor who have stage 4 lung cancer free for more than 15 years will be my role model.

I will follow her instruction

Bone scan result

Today the bone scan result show that my tumor continue smaller. It is a very good news. However the bad news is my blood palette are very low. I had nose bleed for 4 times already. Each day once. Doctor have inject me with donor blood pallette. She say nothing I can do to help as this is natural.

Tomorrow is my CT scan on lung, I wish no cancer found in lung. I will buy a big roasted pig for prayer if the lung result is cancer free.

Children cancer

While waiting for my turn on the bone scan today, my husband ask why the kids are here for the scan. He still cannot accept that cancer are not due to food. Many children as young as baby are born with cancer. There are genetic just like my mother family had cancer and I have cancer.

He used to blame to my work stress and eating habit. What about children? They don't eat so much preserve food nor fast food. They are just born with it.

My god brother was diagnose at age 9. The cancer keep coming back. He past away at the age of 20. Who knows what will happen? If he only stay at home, eat at home, sleep at 10pm. Then what is life for him.

He rather die to continue like that.

For us who diagnose later, I think we are lucky compare to him. As he don't get a chance to enjoy love, school, college and healthy life.

Advice from the survivor of stage 4 cancer maggi

I went to talk again with this friend call maggi. She was diagnose with stage 4 lung cancer metasis to lymphty node. She have many tumor. Doctor tell her no medicine to cure also. However, she does not give up. She continue do chemotherapy and practice Qi Gong 4 hours a day. After 9 months of chemotherapy about 16x of chemo. The tumor disappear, however there are still 2 tumor in the lung. By the way, she have uncountable tumor in her body previously.

She stop chemo and continue Qi gong to cure herself. At last she is cancer free. She is now already 11 years cancer free.

Her advice to me is increase Qi Gong practice and continue chemo. If the doctor are not supportive then change another doctor. The chemo will help to control the tumor so that you can practice Qi Gong and help to increase your oxygen level to kill the cancer. If you cannot walk then how can you practice Qi Gong.

I would like to share this story because the stage 4 cancer is curable. As I know a number of stage 4 cancer survivor.

Plus for your info, maggi follow doctor advice diet. Which means she eat pork, curry mee, bread and less sugar. But she eat sugar.

The diet on the web are not true on the milk, protein, sugar and etc....

You can eat whatever you want, as long as u like to eat. This is maggi principle. Most important is you eat healthy. Go for more steam insteads of deep fry.

The Qi Gong that I join are all cancer patient who are already cancer free. They all practice this diet.

SSG treatment update

2nd Sept 2011 - 2nd day with SSG teabag (consume 1000ml / day).

Good news is tumor at the back no pain at all but my finger felt litter numbness. I felt the SSG teabag has a pain killer effect or it is just striking my tumour. Wah! if yes striking. Good news then. I decided to take for 3 months then go for CT scan.

New plan for my life

Today after consulting the doctor, I realize all this while she is just trying to prolonged my life till one day I die. But this is not what I want. I want a solution. To me this is already like gambling. If I buy chemo, I might die immediatelly or may have 3 years of life. Coz my money can cover 3 years. If I go chinese medicines, I might also die immediately or have longer live Span.

Then to go continue chemo seem not a very good choice as the prop ability of living the most is only 3 years. She tell me my tumor will not have chance to disappear. We can only control the size and spread.

So many cases in Malaysia that people live even thought doctor tell them they have 3 months left. Doctor did not tell me how ling is my life but so I should be in better position than those who doctor say only got 3 months left.

Today is my last day of chemotherapy. After 9 cycle, I finally felt like being cheated. Even without the 9 times chemotherapy I might still be living for this 6 months. Is never too late.

Next week once my white blood cells are back to normal, I will follow the new live. Chinese medicine here I come.

Sabah Snake grass progress

I have start consume the sabah snake grass in tea bag since 18th Aug 2011. As this is my chemotherapy rest week, I will usually feel the pain of the tumour at my L3 bone. 1 day after consume the Sabah Snake grass the pain from my L3 become lesser. Less from level 1 to 0.5. After 2 days, the pain drop to 0.3.

22nd August - whole day chemotherapy so I stop taking SSG

23rd August - discharge, and i continue taking SSG - but I feel itchy on my skin but no redness.

24th August - I did not take SSG, but still litter itchy on my skin

maybe I should considering taking the SSG only during the rest week.

New diet from blog

I found a blog yesterday which I think it is pretty good. The blog help me to overcome drinking milk and eating protein issue. According to the blog, cancer patient can actually prevent the cancer cell from eating the food they need by adding the anti cancer fruit or vegetable to the meat and milk. For example: instead of drinking milk you can drink carrot milk juice. Or when eat pork, you can cook with plenty of tomatoes. You can add any kind of anti cancer vege to it. Such as onion, garlic, tanglad, broccoli and etc.

Socso Pencen ilat for Cancer patient

If you are diagnose with cancer. I would advice you not to work as the doctor advice to. I stop working since then but still got income coming in. For your info, socso will help you during this critical period. If you are still working, you cannot be getting this pencen ilat from socso.

Why you should not be working?

1. To prevent infection
2. To eat healthy food at home
3. To eat your supplement and traditional medicine at home
4. stress free - so that you can cure fast
5. You will have time to do Qi Gong twice a day. at 6 am and 6pm

Although socso will help you but the maximum is 65% of RM 2950. if your average salary is above RM 2950. Whereby on the % is base on how many years of contribution to socso. It is easy to apply. So, for those who are diagnose with cancer I think you should apply.

if unfortunately really cannot live on for those with children, Socso will pay till your children 21 years old.

Porcupine Date for Cancer

Porcupine date is a rare "stone" that found in the stomach of a porcupine.
Porcupine is a mammalian that live in forests. It has a coat of sharp spines
that defend them from predators. It is herbivore. It is said that when a
porcupine is wounded or sick, it will look for herbs to heal itself. As the
healing progress, stone may form in the stomach.

As the body system, genetic build up, and the environment where the porcupine
get herbs for healing are different from each other, hence the outlook, the
smoothness, the size, the quality, and the colours of the porcupine dates that
formed are different.

The porcupine date that stay longer in the body of the porcupine may has
bigger size, much more medicament properties, and hence better quality.
However, not all porcupines produce porcupine date in their bodies, and if it
does one porcupine only can form one porcupine date each. This is why
porcupine dates are of precious price.

There are 3 types of porcupine dates, namely,

1. "Blooded",

2. "Powdery", this type of porcupine date is found in much stronger
porcupine. It is of the best quality among all types and hence it
is the most expensive type of porcupine dates. It has smooth surface
and it is much more harder when compared to other types of porcupine
dates.

3. "Grassy", this type of porcupine date has more coarser surface when
compared to the other two types. It is of greenish brown colour.
Although it is among the cheapest porcupine date it is of good quality
as well.

The differences depend on the regions where the porcupines are found. Nowadays,
the "blooded" is not common. The "powdery" and the "grassy" types are as good.

In tradition, porcupine date had been used as medicine by hill tribes in the
Southern China and South-East Asia. Olden Chinese medical text had recorded the
uses of porcupine date. It is used as anti-inflammatory, antioxidant, natural
antibody, immunization booster, and body-detox.

Today, the porcupine date is well-known in Chinese society in South-East Asia.
It is widely used by the Chinese Malaysian as an alternative medicine in the
treatment of cancer, dengue fever, meningitis, herpes, throat infection,
pneumonia and others.

Dosage:

Children  :  0.1-0.2 g
Adult   :  0.3-0.4 g

Take one to three times a day, depend on individual health conditions.

Administration:

Dissolve the powder in the mouth directly, or dissolve it in a table spoon
with water. It is best taken with an empty stomach.

DIET For cancer patient with Chemotherapy

My 1st session of chemo therapy experience are really bad. I don't ever have the energy to walk. Then I begin to take Chinese medicine at the same time. My 2nd chemotherapy are far more easy. The more I do the less side effect on me. However, my blood cell report are not that good. It is dropping and very difficult to increase. At first is the red blood cell, then now is the white blood cell. What when wrong with my diet that resulted my blood test result so bad.

Breakfast

• I have 2 slide of bread with peanut butter
• 1 cup of milk with nestum added in
• Shark liver oil, Evening primrose, zinc and fish oil

Lunch

• Rice or noddle with beef or pork (It is steam or mild fry)
• Soup (To enhance my stomach strength)
• Vegetable
• Shark liver oil, Evening primrose, zinc and fish oil

Teatime

• Fruit
• Milk

Dinner

• Rice or noddle with beef or pork (It is steam or mild fry)
• Soup (To enhance my stomach strength)
• Vegetable
• bladder black sesame dessert

Drink

• I drink the 500ml boil "Li Zing with fungus" everyday

Before sleep

1/2 teaspoon of porcupine pills

As chemo patient, I'm not allow to eat raw vegetable as it will increase the risk of infections. Therefore I decided to start the raw vegetable program once I stop chemotherapy.

CT SCAN RESULT

Lung CT Scan

17th Feb 2011  measuring 2.6cm x 2.5cm (CT scan at sunway hospital - did not indicate on full size)
29th Apr 2011  measuring 4.5 x 2 x2 cm and 4 x 1.5 x 1.5cm
1st July 2011 measuring 3.2 x 1.8 x 2.2 cm and 4 x 1 x 1.2cm, size are smaller by 29.6% and 46.6% compare to 29th Apr 2011

Tumour at L3 
14th Feb 2011 measuring 1.5 x 1 x 0.5cm
29th Apr 2011 size unchange but shows more sclerosis
1st Jul 2011 size unchance but further increase in sclerosis and can indicate healing.

CEA & CA 19.9 TEST RESULT

                          CEA                            CA 19.9
23/2/2011       2432.9                            No test done
16/3/2011       1491.6                            257
21/3/2011        1581.3
11/4/2011        1354.8                           202
4/5/2011          1066                              196
25/5/2011         677.7                            112
13/6/2011         647.2                              87
4/7/2011           552.9                              72
25/7/2011         321                                  42
15/8/2011         360                                  37

Chemotherapy medicine

The doctor recommended me to take the below medicine.

a) Avastin - To stop the blood vessel to continue supply food to the cancer cell
b) Gemjar and Cisplatin - To kill the cancer cell

The cost for the above medicine are very expensive. It cost about RM 12,000 per cycle.

Cost of chemo treatment

At first I thought is just 6 chemo plus avastin maintaining for 1 year. End up after interview with some patient I might need to do up to 12 times. Every time I'm spending RM 18,000 - RM 22,000. Depending on if with Ct scan or not.

Now I have spent RM 200,000. Should I continue?

Western or Chinese

To continue or to change. I'm in the dilemma, should I try Ssg or continue my treatment. It remind me my mum. At that point of time, I have never ask my mum "how are you?" how is your treatment? I did not even know how to care my mum. I really regret when she past away. I have never thought that my mum diagnose at the age 45 and I diagnose at 31.

I have discuss with my husband and we decided to do both together. The chemo and SSG. I try to search on web for a similar case with me, but could find one.

Low white blood cell

Today I'm suppose to do my 9 th chemotherapy but the blood test result is bad. The white blood cell are way behind. I'm so happy as I don't need to do treatment today. But next week have to go also.

Continue treatment

I was so sad, when the doctor tell me that you need to continue another 3 cycles first! What do you mean by 3 cycles first? To me it seem like a "Never ending story". I ask the doctor until when she said,"We will scan again after 3 cycles". My husband already want to give up chemo. He wanted me to go purely on Chinese medicine which has no scientific proof.

I tell the doctor my concern and I'm not happy with the result. She advice that maybe after this 3 cycles I go for avastin only. My husband agreed with it.

I think it is fair that I go for more chemotherapy, as the 1st stage cancer patient also go for 4 cycles. I'm at stage 4, so fair enough.

I interview a friend who also diagnose with stage 4 lung cancer. She did 16 times of chemotherapy. If she can survive with it, I'm sure I can.

I have no sickness till now only the tumour litter pain and a litter side effect of the treatment on the 1st week. Therefore I'm sure I can be cure. I will fetch my son to school and I will do the jogging with him.

The 6th circle of my chemo therapy

I have done the 6th circle of chemo therapy. I always hope that it is the last time and I only need to do follow up. I pray to God that I hope this is the last time. Tomorrow is the bone scan result and friday is the CT scan result. I felt nervous as I myself feel that it is not so easy.

Final stage of lung cancer, going through treatment for 4 months can recover. I really don't believe it. I think on monday I still need to be admitted. The doctor will say go for another 3 circle and scan to look at the conditions again.

Am I negative to think like this. I just don't want to lie to myself.

I felt sorry to my beloved husband who have been so supportive and caring. I have not being treating him good at all since marriage. Do I still love him? He already being questioning me about this. What I can say is I love the baby more that him.

I scare to leave the world because of my baby. I want him to growth up with a mother. I can feel how it is without a mother.

To my son, I wish I can accompany you throught your stuff time.

How to reduce sign effect of chemo Therapy

After the 1st chemo Therapy treatment, I did the below and I felt better. I do not know which of the below help me but you may try.

1) Take Omega 3 Fish Oil - 3 x a day. It is recommended by a patient who have recover from cancer. According to him this fish oil can help to stregthen the muscle to prevent reduce weight.
2) Take Shark Liver Oil - 3 x a day. Also recommended from the same patient who claim that can prevent cancer cell and also enhance the bone so that can build white blood cell which is very important to cancer patient.
3) Take Evening primrose oil - no cancer help but it will help to enhance your skin. As during the treatment your skin will dry up and your hormone will be low. This evening primrose can help you.
4) Qi Gong everyday. This simple exercise will help you to calm you down and enhance the oxygen level in your body. Which claim can kill the cancer cell.
5) Drink Milk increase the nutrien in your body.
6) Eat meat like pork, chicken and fish. If you really have appetite problem. Drink the soup also can. I increase 2kg by just drinking the soup.
7) If you have money, ask the doctor to give you injections to boost your white blood cell. It will work as well.
8) Water is very important. Drink at least 2 litter a day.

1st Chemotherapy

I have my 1st chemotherapy on 21st February 2011. The side effect are frightening, as It make you feel uneasy the whole week.

My body and leg is weak. Luckily I have my mother in law who cook for me. I have no appetite to eat. Which resulted is low white blood count.

There are so many opinion from all friend and relative, resulted in confuse. You don't know who to follow. I will advice to follow who can make you believe in them as only you believe you will have chance to survive.

I visited hospital every twice a day due to different different reason. Vomiting, Fever, back pain and Stomach crap. Therefore I will advise to get the doctor nearest to your house. It help a lot mentally and save more energy and time.

My husband hardly work as he need to take care of me. Family courage is really important especially 1st and 2nd treatment.

By the 3rd treatment, the side effect have reduce as I have try different way to reduce the side effect. In my next Post I will teach you how to reduce the side effect.

13th Feb 2011 - Diagnose Lung Cancer

The doctor tell me it is cancer. At the age of 31, no smoking and no drinking diagnose with cancer. How did it happen? I could not stop crying. It reminds me my mother and my brother who past away due to cancer also. My mum ovary cancer and my brother had many cancer.

My mum treatment only a few months. Then I never see her again. I was 19 that time. I have never take initiative to take care of her. I have never ask what her feeling and she have never cry. She is very strong.

My brother being fighting for 17th years. He have cancer since very young. I think standard 3. He continue fighting every now and then. Many type of cancer appear.

I felt regret that I have never even care the people surrounding me. Even with both of them. I never know what is cancer or how to take care a cancer patient.

At this point of time, I know family is important. Work is nothing more important than family.